The good thing for him is that he was so young when he was diagnosed that he probably doesn’t know anything else. Saying this from personal experience as I was diagnosed at 14 months in mid 80s. Of course, something like this would be amazing as I can’t tolerate even small amounts of accidental gluten but as I don’t know anything else I can’t even imagine anything else.
I also have really complicated relationship with hope. Mainly, I try not to hope as my body seems to be insanely problematic. I am disabled with multiple autoimmune diseases and genetic syndrome. While objectively I find the advancement in treatment interesting and amazing, I personally try not to hope. It is absolutely exhausting to get your hopes up only for the other shoe to drop.
I think having a digital ID system is very important in the modern age but where it is required needs to be limited. You should not need to use it where it isn’t strictly necessary. We have one in Finland too. You will almost entirely use it to use official services that would need your ID in person as well. In this proposal, the issue is not digital ID but how it would be used. First, where it would be used could compromise revealing too much of your identity when you want privacy and secondly and more importantly, it could compromise revealing your private actions to the government. Latter can move into highly problematic territory when criminalizing actions that should not be criminalized.
They have a HIPAA-compliant version although not sure how secure it really is. In general, companies seem to care more about companies’ privacy than individuals.
I think people are because of the latest trends in social media thinking that you need to be huge to be successful. While you do need a certain threshold of people, semi-anonymous social media really doesn’t need to be that big. Just big enough to sustain enough little bit niche communities. That doesn’t just need users it needs time. People have this habit of hoping someone else will do the heavy lifting. And while I am not able to mod because IRL, I am still looking into niche communities here to see if I can help in some way as contributor. Just need to get through my imposter syndrome in that I don’t really feel good enough for comment creator.
Thanks. I clearly dropped the ball here. I guess 2023 is the year of me migrating to elsewhere from a lot of things.
Why did you make the switch? Just wondering if I have gotten behind with technology on this one.
I had it but really had to scroll to the bottom. It was also not Reddit but articles saying it was the first result. Which is kind of ironic.